Trent Lapinski interviews Ashley Baker, a songwriter and artist, who was diagnosed with Lyme disease just over a year ago. In this episode we discuss her diagnosis, her advocacy work trying to raise awareness, and the controversy that surrounds Lyme disease.
For more info on Lyme disease, please read my article Hacking Chronic Lyme Disease and Co-Infections.
Automated Transcript (may contain errors):
Ashley: 00:05 It’s really sick that, like people are this sick and even has to be a discussion whether or not our government webinars takes. I think that that’s, that disturbs me kind of the most of all of this is like creepy side. I’m like, that’s shadow government. What if question that we’re asking the Pentagon now to answer, why is there not more initiative being taken to educate and figure it out instead of it just being, everybody kept telling me it’s a controversial disease. I’m like, what’s controversial about me being sick? That America is a whole like, you know, the dog get me wrong. I love my country. But there are a lot of things that happen specifically 1952, 1975 that they didn’t tell people about and people are suffering today from their thinking. They have these other ailments and you’ve been getting put on Cymbalta and opioids and other medicines when they really have underlying sections and the Diet that air the water, everything around us is kind of designed to keep us sick. And that’s the sad reality of it. And you have Lyme disease. It’s not just Lyme disease, not just some infection that causes one thing. It is a complex of co-infections and all side effects from hurting, which is what happens. We kill off the line bacteria during the treatment. So I have multiple coinfections and elements that regardless of what caused it, it’s still there.
Trent Lapinski: 01:38 Welcome to the Techpost podcast. I’m your host Trent Lapinski. In this episode I interview Ashley Baker. She’s a musician and an artist and in this episode we discuss her getting diagnosed with Lyme disease about a year ago. I also have Lyme disease myself. So in this episode we dive into the topic about how she got diagnosed, some of the controversies surrounding it, the treatment methods, and some of the stuff that’s been happening recently in Congress asking the Pentagon for more information about it potentially being part of a biological weapons research program. This is an amazing episode. So please
Trent Lapinski: 02:11 Stay tuned.
Trent Lapinski: 02:20 Welcome to the podcast. I’m here with Ashley Baker. Hey Ashley. Tell us a bit about who you are and what you’re working on.
Ashley: 02:26 Hey guys. So my name’s Ashley. I go by Asheville artists. I’m a songwriter from Maryland, a singer, songwriter, rapper, actress. I have Lyme disease, so I’m a Lyme disease advocate and warrior you would say. It’s been about like a year since my diagnosis. And yeah, I just love music and talking to people and connecting people.
Trent Lapinski: 02:51 Awesome. And we talked for quite a while before he ended up hitting record on this. So, oh, there’s so many different topics we could get into, but God, quite the story there. So, you know, just for some context for the audience, I also have chronic Lyme disease myself. But I really want to talk about your experience and what you’ve been through. So can you talk a bit about, you know, for the audience, just kind of explained like what have you been through? Like, let’s, you know, what this, what’s this disease and this diagnosis and you know, battling this, what is, what is this, what are we dealing with here?
Ashley: 03:26 Right. Okay. So a Lyme disease is, has only been in my vocabulary for about a year and a half now. Basically a year and a half ago I was working, I was a server full time, also a trainer, all garden. I was also a cosmetologist. I just graduated beauty school. It was working as an assistant manager and a color specialist at a shop that had just opened up in Hagerstown, like we were in the newspaper, were so excited and then I tore my knee one night while I was serving and you know, I went to the doctor, got an MRI and found that I have a condition where basically the cartilage would go through my legs with my knees is kind of like deteriorating equipment than it should. So I started to do physical therapy for like two, three months and about a month in or a couple of weeks, I started to get very fit, like bizarre symptoms.
Ashley: 04:16 I started to get very fatigued, bad inflammation. I develop eye floaters. So like where I looked around, I had like disruption in my vision. My hearing started to suffer as well as like confusion and like this feeling of psychosis of brain fog. So basically my doctor decided to check me cause I used to be type two diabetic for my glucose levels and she for some reason decided to test me for Lyme disease and it came back as like a false positive. What that basically means is unfortunately the CDC standard is like five bands to be CEC positive. And I didn’t have enough to be considered positive. So she did treat me with doxycycline for a month. I got retested again a couple of months later and my numbers went up. I was now CDC positive for Lyme disease and we were all very confused as to how when I was being treated with doxycycline, which is said to outline disease. So from there I bounced around a doctor’s rheumatoid arthritis, bacteria, infection, neurologist, all that good stuff. They tried to diagnose me with chronic fatigue syndrome, fibromyalgia, rheumatoid arthritis, like you can name it. They were trying to say, I had all these things. I’m like, one doesn’t just randomly develop these symptoms.
Trent Lapinski: 05:33 They did the same thing to me. All kinds of diagnosises three letter a abbreviations for things, Ivs, this, that, the ADH, whatever. Like they just like they just threw on the diagnosises and all that crap. I, sorry to interrupt, but I, you know, I wanted to touch on something you mentioned about the CDC and I think it’s really important for anyone listening to this is the CDC criteria is like criminally, scientifically inaccurate. You actually don’t need to necessarily test positive for five bands to get a proper diagnosis. There are certain antibody bands that are Lyme specific that if you test positive for those you have Lyme disease. Even if you don’t have five antibody bands, there are certain ones that most tests don’t test for like 31 and 34 that you’ve got to go to a private lab to get those tested. And if you do and you end up testing positive, then the only way you can get that antibody is if you have Lyme disease. So yeah, the CDC situation, I mean, I mean did it change your outcome or you know, did they say that like did they delay your treatment or anything? Like what happened there?
Ashley: 06:45 I mean, they basically sent me to a bacteria infection specialists in my area and I’m Hagerstown, Maryland and this was supposed to be the top dog of the, you know, company to help me out. And what they said was that I had an infection, I had antibodies because of course if they don’t test for the actual bacteria can test me on the antibodies, which is interesting. But I’m basically, they figured I had Lyme disease that they didn’t catch early enough. They don’t know how long I’ve had it, but it’s called chronic Lyme disease complex. And they told me that I was supposed to go to cognitive therapy. Like my treatment plan was to go pretty much see a psychiatrist and meditate, eat more Broccoli.
Trent Lapinski: 07:25 Yeah. I had a doctor told me who go to just go live your life. And I was like, well, I don’t have a wife because I’m sick and so literal infection in your brain and it’s causing inflammation. So yeah, I mean you have to treat the underlying bacteria.
Ashley: 07:43 So I’m, after I got the false positive test, my doctor didn’t really know what to do. This was my primary physician. She was super unfamiliar with line, but at least she was smart enough to test me for it. So they put me on Doxycyclin, which is said to be, you know, the first thing you’re supposed to do with Lyme disease. And I was on like two, two or three months of Doxycyclin immediately. And this was before I even had the whole, you know, full positive tests, results she was doing. It
Trent Lapinski: 08:12 Recently did not like, honestly, like they, at least they did that because, I mean we’re, we’re calling it a false positive because that’s what the doctors call it. But it was really a positive positive for Lyme disease. It just didn’t meet CDC criteria.
Ashley: 08:26 Exactly. That’s why I asked my doctor, I’m like, so would a normal, healthy human have any of these antibodies? And she didn’t know the answer to it at the time, but she was like, well, maybe. And so she’s like, maybe it’s not Lyme disease. And like, you know, and it wasn’t even her fault. It was lack of education in the whole healthcare system as a whole. Yeah. So yeah, from there they refer me to all these different doctors. And then I went to see a bacterial infection doctor and he put me, he told me to do the cognitive therapy. He said to go therapists, your psychiatrist, and that was going to be the help for my brain infection.
Trent Lapinski: 09:01 Yeah. And that’s just so ridiculous because it’s literally an infection in your brain, you know, and it’s eating away at your nervous system and it’s causing inflammation in your brain. Like they did the same thing to me. They’re like, oh, it’s in your head. Yeah. Well, it was literally in my head, not mentally in my mind. Those are two different things. It was literally a spiral in our brains. You know, so it’s just so ridiculous that the Goto in the medical system is, oh, here’s, here’s antidepressants, here’s a, you know, here’s mood stabilizers. Oh, you want an anti-psychotic? Like that’s, that’s the crap I had to deal with. Like, especially when we really didn’t know what Lyme disease was and it wasn’t being diagnosed properly. I mean you’ve [inaudible] your story is so interesting because you just don’t know when you got it. Cause most people story starts with I got bit by a tick and you know, and it’s interesting because there’s so many unknowns even about how you get this disease. Were you born with it where it was? Did you get it sexually transmitted? Was this from a transfusion? Was it a different bug? Like is that a possibility? These are all questions that we haven’t researched. We don’t know the answers. Like there’s literally no answers to these questions.
Ashley: 10:23 Well there should, there should be with this being a thing since the seventies seventies but since it’s being more publicly a things since then and we have made like no progress at all, that really raises the question of why, why is there information being suppressed? Why is there not more initiative being taken to educate and figure it out instead of just being, everybody kept telling me it’s a controversial disease. I’m like, what’s controversial about me being sick? You know?
Trent Lapinski: 10:51 And why does, why is disease controversial? I mean, we can get into it. I mean there’s, you know, there’s what’s happening in the house right now. They’re, they passed an amendment. They’re asking the Pentagon if the u s government weaponize ticks in insects for biological research. And it’s, it’s based on a book by Chris Newbie. She did the under our skin documentary, I think she was a producer on it. And you I think had some interactions with one of her associates. And you know, I, I’ve reviewed her book on this podcast. You can go listen to that episode if you want to go take a, I’ll listen to that after this one. But what are your thoughts on all this and can you tell us a bit about the, the guy from under our skin that you’ve been working with?
Ashley: 11:38 Yes. So first I want to say the book bitten. I definitely recommend anybody and everybody to read that book. Not just if you deal with Lyme disease, but if you have any type of disease or if you just want to know about history in the country you live in, you should check it out. I’m actually in just a fun back. You can get it for free on Amazon Audio Book and you can just sign up for the month trial. You can get it. That’s what I did. I downloaded that and lab two, five, seven. So that’s been interesting. So anyways, I think that it’s really sick that like people are this sick and it even has to be a discussion whether or not our government weaponized ticks. I think that that’s, that disturbs me kind of the most of all of this is like the creepy side of like that shadow government.
Ashley: 12:24 What if question that we’re asking the Pentagon now to answer. And Andy Andrews, he was mentioned in bitten actually because he, him a Christian movie did work together for under our skin. Speaking with him, he actually lived in California for a long time. He was anti Lyme disease cause lax, why are you interested in mind disease? And he was like, his sister had gotten mine disease and he didn’t believe her. He thought she was being a hypochondriac. And then one of his friends got it and got really sick and then he started to do more research and found out there’s more to this. So, you know, I think that it’s great to have people who don’t have Lyme disease such as Andy Andrews shedding light on this subject. I think America has a whole like, you know, don’t get me wrong, I love my country, but there are a lot of things that happened specifically in 1950 through 1975 that they didn’t tell people about. And people are suffering today from it. They’re thinking they have these other ailments and there’ve been getting put on Cymbalta and opioids and other medicines when they really have underlying sections and the Diet that air the water, everything around us is kind of designed to keep us sick. And that’s the sad reality of it.
Trent Lapinski: 13:37 My opinion. Yeah. I mean they’re poisoning us. And then even the treatments for these conditions, I mean, it, you know, they, they put me on antidepressants and there have been studies to show that the antidepressants can lead to bacterial resistance to antibiotics. So we don’t really take into drugs that, you know, that can potentially hurt you when you have these infections. So I know you’ve had to take some of these medications and manage some of these symptoms stuff as well. And it’s just, it’s so crazy because you know, we don’t have a medical system that knows how any of this stuff works and there are so many variables and so many, like I, I’m just reflecting back on some of the horrible experiences I’ve had with the medical system. I mean it’s to the point now where I literally just canceled my health insurance cause I was like, I’m just going to pay doctors that know what they’re doing for their knowledge and just pay them in cash for it because that’s the only way that I can guarantee that I’m going to get an honest answer because having to dance around the insurance companies is a nightmare.
Trent Lapinski: 14:44 Can you talk a bit about how you’ve been able to actually successfully get treatment with insurance? Because I find that kind of these days, cause I was denied treatment.
Ashley: 14:54 Yeah, no, totally. And I definitely, I’m Emma empathetic person. So when I went, I’m going to tie this into what you just asked me, but when I went to the chronic Lyme disease rally in DC where we actually talked to the people from the CDC and raise awareness about Lyme disease it was just crazy because it’s like, you know, people just have no idea, you know, and somebody, I feel like when anybody sees one disease written down, like in a medical term, they kind of get a little anxious. I’ve had doctors kind of shy away from me or Kinda just brushed me off because people don’t want to deal with Lyme disease because it is controversial. There are doctors who lost their licenses for practicing outside of what, you know, the American government is saying is good for the medical community, for Lyme disease, and you have Lyme disease.
Ashley: 15:41 It’s not just Lyme disease. It’s not just some infection that causes one thing. It is a complex of co-infections and side effects from hurting, which is what happens when you kill off the line bacteria during treatment. So I have multiple coinfections and ailments that regardless of what caused it, it’s still there. So my doctor is trying to kind of focus on neurological side effects and the inflammation and things we can see with MRIs and blood work versus like just saying what I have. Like we’re trying to get hard proof and documentation on my case.
Trent Lapinski: 16:16 Yeah. And you’ve actually got a pick line in your arm right there. Right now while you’re talking to me because you’re, you’re actually going through an extended round of antibiotic treatment right now. How’s that going?
Ashley: 16:28 It’s going well. For the first time since May, 2018 I can say I have more hope. I don’t think that I’ll ever be the same ever. But you know why misuse takes you to a really dark place? Like it wasn’t just, I’m tired all the time. It was, my body is like, like I felt like my life energy was just leaving me. Like I’ve lost so much muscle mass and just,
Trent Lapinski: 16:54 Yeah, it, it’s, it. I mean, it’s a battle. I, I’ve gone through it to the, you know, it’s, it’s a muscle wasting disease. It, it steals your energy, it breaks down your joints, it affects your nervous system and your brain, your memory. Your recall, I added these podcasts episodes cause I have to edit things out because I say my ums and ers and so’s more skew it sometimes it’s hard to find the right words, so, so no worries here. Ultimately, this is a, you know, this is a, an epidemic that’s happening here now in the United States. This is real. What were you doing before all this? Like you, you’ve got a music career. Like you have a life that is more than just Lyme disease.
Ashley: 17:36 Yeah. so music has always been my thing. Since I was like a little girl. I’ve done, my mom forced me to do talent shows and I was a kid. So I’ve always had a musical background. I did like, I did some on musicals. I got done rent filled on the roof was, you know, things like that. They’re a high school and college. And then recently we did the rock opera, which is a musical all about the aids epidemic in the late eighties, early nineties, which is ironic because like I auditioned for rent back in April and then I got diagnosed with Lyme disease may and then we practice for a whole year. Cause the whole theme with the show of the show is, you know, how do you measure a year? And some people are calling the AIDS epidemic AIDS part too, like B cell aids.
Ashley: 18:21 And you know, just weird for me going through that. But you know, prior to all this, I didn’t even know about Lyme disease. I thought you just get it from a tick. I was working, I had just graduated a beauty school and was working full time as a assistant manager at a salon. I was a color specialist. I was a server, a trainer at all gardens. I was doing a lot of physical physically demanding jobs. Drinking coffee twice a day, consuming cheese, dairy bread. I mean I worked at olive garden, so like Pasta, dessert, like it’s all right there. And then my whole life just changed, like, you know after I tore my knee and then developed the bizarre symptoms and found out about line and then found out that it’s controversial and then I have to, it’s sad that I even have to fight to be sick, but I would say I’m physically not better off with one, but like mentally I’m better off with what I’ve been through from one disease.
Ashley: 19:20 I don’t think my health will ever be the same, but I’m thankful for the lessons I’ve learned already. And I’m only a year in. And you bringing up, you know, and not to bring this back here, but you’re speaking about insurance being a factor with treating line. When I went to the rally in DC, there were so many people from different states, like Texas. We had people from Canada, we had people from all over the place. And just seeing different people from walks of life. One person’s paying like a thousand to 3000 a month for treatment and another person is getting lied to about treatment. They’re getting treatment, but they’re taking like pain medicine and Cymbalta. It’s sick that there’s not just one place we could go to get the right answers to the truth because that’s literally the only thing that’s going to fix this is the truth and true healing. But I’m, I’m not sure if we will see that
Trent Lapinski: 20:09 On every doctor I’ve ever seen. They all have a little puzzle piece of knowledge. And you kind of almost have to see as many doctors as possible and hope that you can gather puzzle pieces from all these different doctors cause they all have different opinions, different solutions, different practices, different herbs that they use or different medications or different protocols. And it’s, there is no guarantee with any of this. There’s no, you know, there’s no one protocol fits all. There’s no just take this drug and you’re going to get better type solution. There’s a lot of experimentation involved. There’s a lot of figuring out like who in what is going to work for you. That’s the other problem is your condition, your, your set of coinfections might not be the same as mine. So you might be dealing with the Lyme and Mycoplasma and I might be dealing with Lyme and BBZ and Bartonella well you’re gonna have a totally different symptom profile than I would and we’re going to have totally different treatments and protocols and things because we’re dealing with different colon factions.
Trent Lapinski: 21:16 Maybe you’ve got Lee, you know Epstein Barr virus. Yeah. You know, maybe I don’t. Maybe you know there’s another virus that we don’t even know what, we haven’t even found it. We haven’t even named it yet that’s causing us both to have symptoms. There’s so many coinfections and there’s so many issues with polymicrobial infections. That is the major issue here. When I’ve talked to doctors, like our medical system talks about one infection at a time and not other educated is you treat one thing at a time and you only deal with one thing at a time. And the idea of multiple infections, it existing in coexisting and actually changing the symptom profile of each other is just so out of left field for like 90% of doctors.
Ashley: 22:07 It is. And I mean when you read the book bidding and lab two five seven and get into this information you it’s mind blowing. It’s really one blowing that they’re splicing bacterias and viruses and like depending on your DNA is going to affect you differently. And like I want to view, I’m sure you know about the like the Tuskegee experiments and I currently am like they were testing with syphilis and with why I’m to see why I’m a aspire keeping a direct cousin. I’m syphilis and it just makes you think because the u s I believe did admit to the Tuskegee experiments at timeline wise. That was right before 1950 1975 it’s just, I don’t really do believe in coincidence is like that. And if not, you know the government’s going to do what they’re going to do regardless of, it’s like me saying this, like I just want them to do the right things. This might save some lives, but I feel like they’re making too much money off of the false diagnosises and surprising the truth. So I don’t know if we will see the truth on that.
Trent Lapinski: 23:09 I hope we do. I mean, part of me is really, really hopeful that, you know, we’re finally at a point where it’s been long enough that they’re willing to say, yeah, you know, we were doing this biological research. You know, I, I don’t know if it escaped the lab. I don’t know if it was, you know, sent out into the world on purpose. I don’t know if, you know, the Russian government stole it and then attack America with it. I don’t, we don’t know those answers because unfortunately that information is likely classified and someone somewhere or some documentation at the Pentagon and the CIA, they know what happened and they’re not telling us. I mean, if it was the Russians, I think as citizens we have a right to know that we were attacked by another country if it escaped the lab by accident. I think as citizens of this country, we have a right to know this escaped a lot by accident.
Trent Lapinski: 24:03 If our government did this on purpose and released this with an intention, we have a right to know if they did this on purpose. Or if the purpose was something else and then it was an experiment that, you know, went the wrong way or I don’t know. But at the very least, if we can get the reality of what this is figured out and we establish that, hey, we’re working from this point, this is, this is a fact, and then we can move forward from there and figure out what the next solution is, then we can form plans, then we can strategize around this, then we can enact legislation to make the insurance companies provide accurate treatment. We can push the CDC to, you know, figure out better testing methods. I mean, one of the things that boggles my mind is veterinary medicine is like 10 years ahead of where we’re at with people.
Trent Lapinski: 24:56 They have more effective Lyme disease tests for dogs, for people, and they have better treatment protocols and they have more like laid out protocols for chronic versus non chronic for animals. But yet for human beings it’s controversial and we’re using western block tests that are inaccurate. And then the criteria, even though you’ve tested positive, they tell you, oh, it’s a false positive. And it’s like, no, it’s, it’s a positive and you shouldn’t, that, that means you need to be treated. So it’s, it’s so, it’s so crazy because we, we unfortunately we live in this world now of fake news of you know, of altered search results that no longer, you know, no longer reflect the facts. I mean, part of the biggest issue with Lyme is the misinformation that is available when you search and you get involved in these lime communities. Like, I mean, on one hand I’m really appreciative of the wine community because they’re doing everything they can to try to help each other.
Trent Lapinski: 26:08 At the same time, it’s a bunch of people who are sick trying to figure out how to solve this problem and we’re not the ones that should be solving this problem because we’re sick. So unfortunately when you’re dealing with an infection that like impacts your brain and your decision making, like it’s really difficult to all of a sudden learn how to become your own doctor. Unfortunately as happened to the line community. So you get sucked into this kind of like rabbit hole of, Oh, have you tried this? Have you tried that? Have you tried this? And just all constantly trying to like meet up and compare notes and what worked for you, what didn’t work for you. And it’s, it’s chaos. And then I’ve even talked to some people who did not have Lyme disease who then were misdiagnosed with Lyme. And you get those people who are harmed as well because they do a year of antibiotics and just get worse because they didn’t have Lyme and were misdiagnosed. So you get both ends of the spectrum where people who have diagnosises like Fibromyalgia, like Ms that is actually Lyme disease and they’re not given the adequate treatment they need. Then you have other cases where someone’s misdiagnosed with Lyme when they don’t have it, and then they get treatment they don’t need. And it’s all just simply a lack of education and a breakdown of the medical system. Right?
Ashley: 27:37 So once it is why, why when we are so advanced in all these other areas, why it makes you have to come back to the accusations and the information that you and I both know about what the government did do for the future. Even just Lyme disease, they also did other experiments with, I mean I’m not trying to take it super farfetched year, but like mk ultra, there was some things with like Frank Olson, I don’t know if you’re familiar with that. Like there’s something on Netflix called Wormwood I believe and that’s like his Frank Olson son. He gets into the story about like his father and like how they were given the scientist psychedelics and some of them couldn’t handle it. They were dropping viruses and like subways, listen, there’s crazy information out there and like it’s not for a, things don’t make sense right now and I just hope people open their eyes up and become their own advocates. Otherwise, if we just let the government continue to do this, like there’s no hope for the future. Everybody is going to be completely sick and then what’s going to happen?
Trent Lapinski: 28:40 Well, the crazy thing is like with mk ultra, I mean that is a declassified program and you can go read their declassified reports of what they did and people still don’t believe it. It just boggles my mind when the source of the information is the government. And people go, oh, that can’t be true. And it’s like, so you’ll believe the government and you’ll believe the CDC that if you have less than five antibody bands, you don’t have Lyme disease in that chronic Lyme disease doesn’t exist. But yet you won’t believe them when they declassify something where they’re saying, yeah, we did this,
Ashley: 29:18 It’s crazy. And that falls into the problem as like a collective conscious that we were really failing. I feel we’re so easily distracted, especially in America, not just here, but we’re so easily distracted by planets of the, I mean a district 51 means and you know, Kardashians and what Kanye is doing, it’s like there are things right now that do affect you and your children, your children’s show do. Or people are so consumed in this ego mentality. It’s just, it’s really detrimental as a whole for like,
Trent Lapinski: 29:55 No, absolutely. And it’s, I mean, I on one hand I’m hopeful that people like yourself who are coming out and speaking about this, I mean me telling my own story, it took a really long time to come out with this. It’s not easy. But you know, it’s, it’s really important that people like yourself have the courage to speak your truth and tell people what’s going on. This is not just happening to us. This is happening to millions of people around the world. This is right at the demic. This is the infection that I’ve been reading about super bugs and how in the future they were going to be antibiotic resistant infections and you know, there was going to be, I mean, there’s literally an entire movie industry of Zombie movies about this. You know, like there’s an entire genre of films about this exact kind of subject and topic and we’re here in 2019 when we’re recording this right now. Lyme disease is the superbug we’ve been warned about for decades. It’s here, it’s now, it’s happening. I have it. You have it. People’s childrens are getting it. Are Dogs in our cats and our pets are getting it. Our, I mean, I, I’m afraid it’s in our food supply.
Ashley: 31:19 I agree. Because think about it, if a rabbit or something goes and uses the bathroom, a garden, and then maybe that bacteria is there and grows on the cucumbers, who’s the say it’s not there? Still?
Trent Lapinski: 31:29 Well, think about cows, cattle you know, think about the actual livestock. I mean, they, they dose our livestock in this country with antibiotics and hormones and all this crazy stuff. Well, you know, one of the theories in lot two 57 is, you know, that this was potentially created or at least released potentially from plum island, which was an FDA research facility. And they were doing research because they were looking at using these diseases possibly as a way to eliminate an enemy’s food supply. So,
Ashley: 32:04 Oh, right. And here’s the FDA that was doing it technically
Trent Lapinski: 32:09 Correct. So it was in association with the military and you know, we don’t know if Lyme disease came from plum island or not. Based on what was in bitten, you know, we’d know that it potentially came from, what is it, the mountain the rocky mountain lab and yeah, that’s where, or Darfur was actually doing his initial research. Then he was going to Washington d C bringing samples with him to the Pentagon and giving a, I think it was Fort Dietrich and giving them these diseases that they were breeding inside of these tick stomachs. So we know, like, I mean the guy confess, that’s the thing that just like huddles my mind. Like I, you know, I’m in, I’m admitting this as a man, but whatever. I literally cried when I was reading bitten because when I got to the part where he confessed, it became real.
Trent Lapinski: 33:06 That was it for me. It literally brought tears to my eyes. I, I don’t get that emotional that often to the point where it brings me to tears. But that brought tears to my eyes when I got to the part where he confessed in the book, I believe him more than whatever is going to happen next with whatever the government says, whatever, you know, news report comes out or whatever the Pentagon says, I at the end of the day, I’m going to believe the guy who confessed on like right before he died, probably more so than whatever they conclusion they ended up coming to.
Ashley: 33:44 Yeah. Like how it’s cause he’s, he’s been incredible this whole time and helping you guys figure out what while I’m sparkly was and all that. So isn’t he still just as credible?
Trent Lapinski: 33:55 Yup. And it, I mean, the thing that really got to me as well was the fact that there was a Rickettsia Helvetica, which just was left out as a causative agent, as a potential causative agent. And now we know Rickettsia Helvetica at the time, it didn’t even have a name, it was called the Swiss agent. We now know that it’s pretty much undetectable. It causes a range of neurological symptoms. And it very well could be that it is still a potential causative agent is one of the Colon infections that is infecting people and causing some of these symptoms. So it could be that the person who gets Lyme disease from, you know, one tick doesn’t get Rickettsia Helvetica and around the doxy cures them and they’re good to go and they don’t get any other coinfections that can happen. That’s a possibility. But what happens is the person who gets bit by a tick that’s got the BZA Lyme disease and Rick hotseat Helvetica, what happens to that person? Doc sees not going to fix them. So, and they’re not going to test positive on a test. So, you know, they might test positive for the lime, but they might not test positive for the Babesia or the Rickettsia. So there’s just so many different variables here. It’s just, it’s insane.
Ashley: 35:14 Yeah. And people don’t even know about the other coinfections. Like I had no information of it. Whenever they present Lyme disease to me, I’m thinking it’s one bacteria. I have had a bullseye rash. You know, all the information we know about Lyme disease is just completely incorrect and we need to completely reeducate people about Lyme disease, you know, and
Trent Lapinski: 35:34 Especially our doctors.
Ashley: 35:36 Yeah. And that’s, that’s the thing. But we really need like the CDC and IBSA and all these other people too, like and corporations too. He real and I just seemed so unrealistic because of the world we live in today. I am just, listen, I completely agree with you and I read that I was heartbroken. I still am. I mentioned earlier, I have a really good poker face, but like Lyme disease is the most terrible, amazing thing that ever happened in me. It’s awful. I wouldn’t wish it on my enemy because it’s suffering. You are suffering people. I do a lot of like positive posts and like music and things like that and people always come to me and say, you’re so uplifting and like you’re positive all the time. It’s like all of this stems from deep pain and struggle and like suffering. And for me to even have to fight to be sick, like I don’t want to have Lyme disease.
Ashley: 36:31 I don’t want to have to be an advocate for this or share all these things on my Facebook constantly, but I have to talk about it. I won’t talk about it if you don’t talk about it. Who is gonna represent for this whole group, these millions of people who were just dying silently. And it’s really heartbreaking. It really is. And I, I really just hope that people will wake up in America because America, as I mentioned, people are very distracted. You’re vibrating on a very low level and people, it’s time for people to wake up because we can’t keep repeating our father’s mistakes. Like it’s time to fix stuff.
Trent Lapinski: 37:05 Yeah, no, I fully agree with you. It’s completely changed the course of my life. And I mean even yesterday I had a minor flare up. You know, luckily I kind of know what these things are now and I’m able to manage them, but I mean, I was pretty much incapacitated last night. I had to drop everything I was doing. I basically just had to manage this minor flare up. I was having my lymphatic system swelled up. It happens every full moon. I mean it sounds so crazy to tell people this, but full moons cause my Lyme disease to flare up and oh I’ve talked to dozens of other Lyme disease patients who also have Lyme disease and they all experienced the same thing and we don’t even know why it is like there’s theories, there’s hypothesis but we don’t know why. Every time there’s a full moon there’s most of the people who have Lyme disease have a flare up.
Trent Lapinski: 38:06 Yeah. Is it frequency? Is it, is there something gravitational happening inside the human body? Is it reproducing on a lunar cycle? Ways like we don’t even understand a almost universal symptom for everyone who has Lyme disease. We don’t, we don’t talk about it. We don’t, there’s no research done about it. It’s just yet all these people have this experience. Other one is EMF sensitivity. Yeah. I mean you and I talked a little bit about this before the recording and you know I could tell you are probably hearing some things that you might not have heard before and I’m going to explain it to the audience real quick. Here is basically Lyme eats away at the neural sheets. It’s called De myelination and it’s this fatty layer that’s around the nerds. So if the Lyme disease fire key comes in and eats that fatty layer, the nerve is then exposed.
Trent Lapinski: 39:04 So it’s exposed to all stimuli. It doesn’t matter if it’s EMF, it doesn’t matter if it’s a fluorescent light, it’s just now hypersensitive period to all things. So of course someone with nerve damage is going to be sensitive to electromagnetic frequencies and energy. Like this is not a, this is not woo woo. This is not like nonsense here. Like this is, this is a real symptom that happens to people who have nerve damage and the amount of like blow back. And people that I’ve had to argue with about this topic is just insane. You bring up EMF sensitivity and people are like, that’s not real. That can’t possibly be like, you can’t sense why Phi and cell phone signals. And it’s like, actually I can and it’s because I have nerve damage and it’s a real condition caused by Lyme disease. And it’s so difficult to explain to people that know we do not live in this black and white world.
Trent Lapinski: 40:10 We live in this world of all these different possibilities and all of these different variables. And you literally can’t get the information because it’s just not available. You can try to Google this stuff, but you’re not going to get the truth on Google. Like if you got the truth on Google, they’d be out of a job. Like, because their business is selling advertising and products. Like it’s what they do as a company. So you’re trusting an advertiser organization for looking for the truth. Like what? Like that’s not how they make their money. They don’t make their money telling you the truth. So people unfortunately trust what they find when they Google for something. And you shouldn’t because it probably isn’t true. So you can look at the studies and you can try and rely on the medical research. But I think something like 90 to 95% of studies can’t be reproduced, like insert it.
Trent Lapinski: 41:06 Especially when it comes to like psychology and psychiatry and certain things. Like a lot of this science is just made up. It’s not real. But I can tell you that every time there’s a full moon I relapsed and my symptoms, I can tell you, I’ve talked to many other Lyme disease patients who have experienced the same. I can tell you that when I’m in a room full of people who are all in their phones and I want LTE, like it has an accumulative effect that can trigger some of my nerves. Symptoms. Yeah. And cause inflammation. It’s, it’s not fake. It’s real. This stuff is real. It’s, it makes logical sense. It makes scientific sense. But the amount of flack and pushback you get from some people is just, it’s insane. Like you literally have to fight just to explain to people that this exists and we shouldn’t have to do that. Like [inaudible] it’s nonsense really.
Ashley: 42:03 Yeah. It’s exhausting
Trent Lapinski: 42:06 When we’re already chronically fatigued,
Ashley: 42:09 Like literally, I’m so tired. I was in it. And going off of what you said, I think that denial aspect is really hurtful, especially even in the Lyme community. I’ve had people who have had Lyme disease for like 2030 40 years coming at me because I’m still trying to be positive and optimistic and uplifting, and they’re like, you’re naive. Do you have this for 10 years? Like you’re never gonna get better. You’re not. You know what I mean? It’s like I think people are tired. People are exhausted. Your signal, not like leading death with one diseases. Honestly, from what I’m understanding, the suicide, if I’m not mistaken.
Trent Lapinski: 42:48 Yup. It’s, there’s a high suicide rate with people who have lung disease
Ashley: 42:51 And I see it. I can see why. Like if I wasn’t mentally strong, I don’t know where I would be right now because this disease will test every single limit in you physically, mentally, and even spiritually. And you know why me? And like I never, I didn’t listen before this, I didn’t take Ibuprofen. I didn’t drink soda. I rarely ever ate at McDonald’s. Like I always was like that help nut stay woke person. So it’s like for this to happen to me, I don’t believe in coincidence. I know I’m at the right place at the right time and I just, I pray for humanity as a whole and I hope that people will become their own advocates and instead of just clicking a link on Facebook, do your own research and cross reference your sources and like for yourself, you know,
Trent Lapinski: 43:42 Or what I do is I talk to people, I trust people like, you know, I trust talking to another Lyme patient and comparing notes. Like I trust that that’s been almost more valuable for me than even some of my doctors because I, at the end of the day, I trust people. I don’t, I don’t trust the crap I find on the Internet. I trust having a conversation like what you are and I are having right now that there’s something to that that we’re forgetting because of snapchat and likes and tweets and clicks and all this crap and we’re forgetting that. Yeah, there’s a human being behind that device, right? There’s millions of us suffering from an epidemic of a super bug that’s here, that was possibly by our own government. And you know, that’s, that’s reality. I mean, that’s reality for me and you and millions of other people.
Trent Lapinski: 44:40 So I’m hopeful, you know, [inaudible] people like you will continue to get the word out that we can continue to raise awareness for this. I’m hopeful that science is going to provide some answers and we’re going to be able to find some solutions. I mean, there’s definitely two things here where, you know, you have to treat the actual bacterial infection first and then you’ve got to figure out how to reverse the damage. But I mean, we’re making advances in stem cells, we’re making advances in you know, at the genetics and how to improve these things. So, you know, there are going to be new innovations in the medical field that are going to help people like you and I, and we can’t lose hope. We have to continue to push forward.
Ashley: 45:26 Yeah. So you have to keep your faith and that doesn’t have to be religious faith, faith in yourself. Faith in just hope as a whole. You have to keep it, otherwise you will be taken under and you know overall the where we’re at. We’re in a really weird spot. Like we’re waiting to hear what the government’s going to say. Like you guys are already
Trent Lapinski: 45:49 Alright. I’ve already read the evidence. The evidence to me is already clear. I don’t care what the government says at this point.
Ashley: 45:55 That’s what I’m saying. Like you guys weaponized it where ever we want to talk about it. Y’all did some am world work. You basically continued Nazis work when you brought them over here under project paperclip. Everybody gets so offended about the Holocaust and all the things that happen, but like dude, they were doing those experiments and similar things here. There was weird animals that washed up near my island. I’m, I’m going to take it there. Listen live it. I’m telling you, even the celebrities who have a wide disease such as like Avril Levine, Shenai Twain, I was Baldwin. Why don’t we see them on your speaking like if the Pentagon’s getting questioned if they did this or not. What celebrities and bigger people of status standing up for us.
Trent Lapinski: 46:35 There is a senator that has Lyme disease or had Lyme disease and was treated. I wonder what information they had access to that you and I don’t.
Ashley: 46:44 And are they speaking up about the corrupt part? Because they’re above us. They’re more, they have more on the line it sponsorships. They have the public eye on them mainstream. So it’s like we’d be, they got threatened and I’m not saying anything
Trent Lapinski: 46:57 Saying they might’ve been told to we’ll give you the cure, but you can’t tell anyone.
Ashley: 47:03 Got It.
Trent Lapinski: 47:04 Yeah. And we’ll see. Yeah. Do you have any final thoughts here before we wrap up?
Ashley: 47:10 I mean, just overall for anybody out there watching, like, you know, do your own research and get on here and talk to people and don’t take everything at face value because nothing’s really ever than seen. So Liz Earth well I am diseases. I never had any idea. I never fathom that Lyme disease was as serious as it is until it happened to me. And as Cliche as it sounds, you just never know until you, and unfortunately there’s people walking around with ms diagnosises or ailments and you actually have infection in your brain and body and the things your lifestyle and diet and low vibrations are just feeding this parasite that’s eating on you. And as drastic as it sounds, I I believe in, I’m hopeful I have faith. I’m hopeful that things will turn around for people and as of right now I’m gonna forever talk about Lyme disease. I’ll be advocate and so I can’t speak about it anymore because there’s people out here who don’t have a voice, who have died, who have committed suicide or just don’t have people like how you and I have each other now to speak. There’s people out here alone suffering. So please do your research and let’s just pray that something happens and comes of this whole department of Defense and Pentagon being questioned.
Trent Lapinski: 48:29 Yeah, I’m hopeful of that as well. And thank you for having the courage to come on this show. Talk to me and continuing your advocacy work and raising awareness because you know, this is a, this is, these are our lives. This is not, you know, this is not this is not, we’re not promoting, you know, something here. We’re not trying to sell you anything like our literal lives depend on figuring these things out, figuring out what the facts are so that people like you and I can get treatment and get better and live our lives. For me, I want to eventually have kids and start a family. Like I can’t do that if I’m getting flare ups. Every time there’s a full moon, you know, it’s a, it’s crazy. So again, thank you for coming on the show. Where can people find you?
Ashley: 49:19 Thank you. Thank you. So I am on I just not recently got my cell phone off streaming platform. So Spotify, apple music, Amazon music, youtube, all that good stuff. You could look up ash, the artists, it’s all one word, capital A’s, ash. The artists on Facebook. I have a Facebook page as well as an Instagram page. Both are called Ash. The artists. I also have a Facebook and Instagram page for Lyme disease awareness, which is called one, don’t kill, modify on Instagram and live life on Facebook. So I’ll hopefully be able to send you some like links for this so people can maybe like,
Trent Lapinski: 49:56 Yeah, I’ll put them in the description.
Ashley: 49:59 Perfect. Yeah. And just overall like I hope people can hear my story and have inspiration and know that we’re not what we’re going through. We are not what we going through and don’t ever be ashamed of where you’ve been because it’s building your character and making you strong and overall doing research online while we’re in bug spray and like educate yourself please cause it’s
Trent Lapinski: 50:24 Yourself. That’s a really important is people really need to wear bug spray and long pants when they go out in the woods and that kind of thing. You can get bit anywhere on your body. You know, and a lot of people do get bit on the chest, on their arms, on their necks. So yeah, and then there’s a possibility that some of these infections can come from other bugs in other situations as well. So we don’t know because no one will fund the research. So tell you what the answer is because no one will prove it. But again, thank you for coming on. It has been absolute pleasure. I will put those links in the description so people can find them and please continue to do the work that you’re doing and I hope you feel better. Thank you. I hope you feel better into the light that you’ve shuttle in from me as well.
Trent Lapinski: 51:24 Thanks for watching another uncensored episode of tech posts. Dot Io. I’m your host Trent Lapinski and don’t forget to subscribe to us on Youtube and hit that little notification bell next to the subscribe button so that you can get notified when we release new episodes. You can also find us on iTunes, Google play, and other social networks including Twitter and Facebook at tech post Io. And you can find me personally at Trent Lapinski. Once again, I’m Trent Lapinski and this has been another great episode of tech posts, not io. We’ll see you soon.